This morning, Saturday, was a good day. Jackson was able to ditch the vent and is breathing perfectly on his own. He gave us quite a scare yesterday but proved he just wanted to do things on his own terms! And now he gets his precious binkie back!
This is the first time I've held him since before surgery on Wednesday. And it wasn't really holding him because he is still in a significant amount of pain. He just laid on my lap. But we both enjoyed it. He could only tolerate being held for about 15 minutes but it was so nice to hold him again.
Funny thing about my 2 boys. But by funny I mean horrifying. They are breath holders. Carter started that lovely thing at about 1 year of age and it continued for about a year. Getting so mad that he would hold his breath until he passed completely out. Scared the crap out of us. He only did a handful of times but that is more than one person should be. The Dr. just told us to ignore him when he did this because he could start to do it for attention. It's pretty hard to ignore your child when he's purple and about to pass out. Carter did it a couple of times when I would suction his nose with the blue bulb syringe. Luckily, he seems to have outgrown it. Sadly, Jackson also picked up this gene. He's held his breath several times in a screaming fit, but hadn't come close to passing out. Until yesterday. The RT came in to give him a spontaneous breathing trial and decided to start it by suctioning his nose and mouth. And then turned the vent wayyyy down. Well Jax got ticked from being suctioned, held his breath, turned purple and passed out. Scared me to death. So at his next breathing trial, I left the room, and the RT didn't suction him. He passed with flying colors so they pulled the vent and he's been fine ever since.
He still has the Anderson tube in his nose to suction all the stomach juices out of his stomach. Once his bowels wake up we can pull that and start back with eating. Luckily he hasn't really noticed that he's been without food for 3 days.
The bad part of this stay.......SHARED ROOMS. We have been spoiled in all of our other hospitalizations with private rooms. But I will try to be patient and hope that we get transferred soon.
The plan is that once he starts eating, and keeping it down, we can come home again. Hopefully in another week or 2.
Thanks for all the prayers offered in his behalf and the texts and phone calls. They mean a lot.
6 comments:
Wow, you guys are an amazing little family, Jackson such a little trooper. We will pray you can get home safe and sound.
You forgot to mention where your 2 boys get this "hold your breath and pass out" gene from... their mother!! Usually parents who have a child who does a terrible thing will wish that their kids will have a kid just like them so they know what it feels like, but probably not with this little trait... too scary.
I'm so glad he's off the vent and that you got to "hold" him. Poor baby to be in so much pain. So glad that babies don't have memories and that he'll never remember how much pain he was in. But it sounds like he may remember sharing a room with a crying 2 year old... I am keeping my fingers crossed for private rooms SOON! Love and prayers to all of you.
I'm glad things went well with the surgery. I didn't see that he was having surgery until he had already had it. I will keep you guys and little Jax in my prayers. I hope he has a great and speedy recovery! And that stinks about the shared rooms! Yuck!
He is so sweet! My sister used to hold her breath and pass out too. Little stinkers! I'm glad the surgery is over and he's on his way to healing. Hope everything continues to go well. Let us know if you need ANYTHING!
What a trial you guys have been going through. You're all so amazing. I'm glad Peyton doesn't hold her breath like your little guys. I hope there is much holding your adorable little man in the near future.
hope your littlest man is improving every day!!!
he sure is handsome one.
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