Remember in a previous post where I said we hadn't been in the hospital in August yet? Well I jinxed us. Last Sunday we woke up to find Jackson with a low grade fever. In most babies a fever this low wouldn't require immediate action. With Jackson any fever gets us a quick departure to the hospital. Once again Jax had an infection in the PICC line in his arm. They tried to kill the bug and keep the PICC in but sadly the BUG won and they pulled the PICC.
I can't tell you how depressing it is to have to take him back to the hospital AGAIN. (I am typing this post from Primary Children's.) Here we are on day 7 of his hospitalization and won't be released until tomorrow. I keep thinking that surely he deserves a break and that we'll be home, safe and sound until his big surgery in November. And I may have murmured when this fever started. Saying things such as: It's not fair. He doesn't deserve this. He's too tiny and cute to be stuck in the hospital. When will it ever end?
But on the other side of things I am trying to look at the positives. Such as: We got to stay at Logan Regional for 6 of the 8 days which makes it so much easier on everyone. Logan Regional knows Jax very well and he gets his own personal nurse 24 hours a day. He doesn't have to share her with anyone. So if he needs rocked in the middle of the night, she can sit there all night with him. Also-we have only had to buy one package of diapers because we are in the hospital so often and they always send us home with extras!
It is so hard trying to find/keep a balance while Jax is in the hospital. I feel guilty if I leave him yet I feel guilty if I'm away from Carter for too long because he needs me to. I feel like people will judge me when I say the next part: I don't sleep at the hospital at nights with Jax. I tried that before. I slept about 60 minutes the whole night and those 60 minutes weren't even together. Then I was so tired, more grouchy and more emotional than normal. Those nurses are coming in and out of the room almost constantly. Luckily Jax can sleep through most of it, I cannot. The social workers at the hospital are constantly telling us that you can't take care of your sick baby unless you take care of yourself. So I try. Which I have decided means leaving at night. Luckily Jackson doesn't notice and won't remember. He's such a great sleeper.
Moving on.............
Carter has really been into playing "Doctor and Ambulance" lately. Go figure. He knows more medical terms than most 3 year olds. After we grew tired of playing for the 100,000,000 time we decided to let him practice his skills on a real patient.
This day was one of the best of my life! Jackson was totally digging the attention from Carter and laid there content, cooing and smiling for the whole exam. It melted my heart.
Side Note: Carter usually starts his exams with shots. And usually 5-10 shots! But right before he started he made it very clear that he wouldn't be giving Jackson any shots. He kept saying over and over "Jackson needs no shots, they will hurt him." I was amazed at how sweet and concerned he was with Jax. He knows they are pretend but still didn't want to give his brother any shots.
The he got out his trusty stethoscope and proceeded to listen to many different places.
Jackson got the all clear!
Last but not least was his temperature. Do you notice Jackson's full cheeks? This little guy is weighing in today at 11 lbs 11 oz! He is really porking up finally. And the best news of the day: Jackson gets to start Demand Feeding tomorrow. Which means he gets to eat what he wants to eat, when he wants to eat it. No more rigid 3 hour schedule. Which means a happier baby and happier parents! We're just hoping his little body can handle this big change. Keep your fingers crossed!
PS-Dr. Carter Etherington is currently accepting new patients. No insurance needed. Experienced in ambulance rides, epi pen shots, and tender loving care. Call now for an appointment.

5 comments:
Amanda, I am so grateful I can stay up on your little family through your blog. Jax is a trooper but so are the rest of you guys. What a great family, we look up to you in so many ways.
JD's foot really doesn't compare to what you have been through with Jax. But what I can say is the time went so quickly, I look back now and what seemed so long then was hardly anything now. Dr. visits gradually start getting less and less and the memory of countless hours of worry and tears seem to fade away.
You guys are on our minds often. If there is anything we can do 500 miles away, please let us know.
love,
jess and kari
I think you're going to have another Dr. Etherington in the family. Carter is a natural! Good thing he's so gentle with Jackson because I can attest to the fact that his shots are brutal! I guess he's still paying me back for the one I had to give him. Those pictures are keepers. I want copies. Glad you're home and I hope you can stay out of the hospital for a long time.
I LOVE the pics of Carter playing doctor on Jax. Those are priceless. Both of them have more experience in doctoring and hospitals than any 3 year old and 3 month old I know. They are pros. Soon they will be able to take care of any medical need that anyone in the house needs. I will be coming to either of the Dr. Etherington's for my medical needs!
You are doing great and need to let go of all your guilt- you are balancing everything amazingly and you always have and always will do what is best for your family. Jax will be able to look back at this blog someday and will know how much you sacrificed for him and will never think that you didn't do enough or didn't spend enough time with him. He is lucky to have a mom that has sacrificed so much to be able to take care of his medical needs at home, much more so than a lot of nurses can do.
Give him a kiss from me! So glad he can eat all he wants now. His first fat roll will be in honor of me and I will name one of my love handles after him.
I love how well little Dr. Carter Etherington did on his brother's exam! How cute! Amanda, you are amazing and doing a wonderful job!
He's the cutest Dr.! I loved these pics!
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